Support the Huntington’s Disease Research Management clinic and provide clinical advice, guidance and support, and lead complex research projects within the area of Huntington’s disease.

Key Duties

• Provide professional advice and guidance on the Enroll-HD research project and other linked studies to internal and external customers (across academic, NHS and industry) that will have institute wide impacts, using judgement and creativity to suggest the most appropriate course of action where appropriate, and ensuring complex and conceptual issues are understood
• Take responsibility for managing and resolving issues that arise independently relevant to the complex specialist coordinating and nursing research requirements of the Enroll-HD clinical study and other linked studies where they fall within set role objectives.
• Coordinate patient involvement in new and ongoing Enroll-HD clinical studies and related studies.
• Investigate and analyse specific issues within clinical trial research nursing, creating recommendation reports, supported by advances within clinical trials and other study designs
• Ensure that the provision of related clinical trials and studies is delivered to the institution, proactively changing the delivery according to customer requirements
• Establish relationships with key contacts to ensure role objectives are meet, developing appropriate communication links with the University’s Schools/Directorates and outside bodies as required
• Create specific working groups from colleagues across the University to achieve the Centre’s research objectives
• Undertake trial specific training to deliver study protocols as required, including taking and processing blood samples from participants.
• Develop and deliver training for Enroll-HD clinical trials and other related studies
• Undertake a variety of research and administrative duties to support the centre
• Instruct and guide other employees across the Centre where required in relation to HD research
• Ensure that work is undertaken and documented in a regulatory compliant way and be prepared for regular audits and inspections, as well as contributing to the development of the quality management system for the area of HD trials.

General Duties

• Ensure that an understanding of the importance of confidentiality is applied when undertaking all duties
• Abide by University policies on Health and Safety and Equality and Diversity
• Perform other duties occasionally which are not included above, but which will be consistent with the role