Close Relative Marriage Neonatal Nurse

at  Frimley Health NHS Foundation Trust

This role aims to improve access to the provision of a culturally competent genetic service for consanguineous families at increased risk of autosomal recessive genetic disorders in Slough. The post holder will work as a member of the neonatal outreach team, to identify Slough families where consanguineous related disorders are present and improve access to genetic services for families to enable informed reproductive decision-making. Identify families that are admitted to NICU with a probable or likely genetic aetiology linked to close relative marriage and conditions likely to be inherited in an autosomal manner and initiate conversations with family in a sensitive, culturally appropriate manner. Ensure that families who need information about genetic risk and close relative marriage receive this support.
Support other staff members to provide accurate, unbiased, non-judgemental evidence-based information to service users. Deliver a comprehensive training programme including access to genetic literacy information, to all staff, within neonatal services supporting the implementation of the national strategy. Maintain their own clinical skills and competencies and have excellent communication skills. Develop an understanding of the issues and research evidence of the subject matter.
Ensure that provision of genetic information is available to Slough women/families who are affected by this issue to enable empowered decision making. Enable parents to make informed choices in a culturally sensitive empowering way. Initiate sensitive, appropriate conversations with families affected with recessive disorders linked to close relative marriage. Support and improve engagement with genetic services for affected families.
Establish the role within the neonatal team and be a point of contact referral for the wider team. Work towards incorporating genetic information into neonatal care where appropriate. Help to improve access to genetics services for at risk consanguineous families. Ensure a common understanding of genetic risk Promote the use of standardised resources and materials Support the development of joint ways of working across maternity, neonates, paediatrics, clinical genetics, health visiting and general practice in the local high need area Ensure learning is shared across the Trust Support the development of networks and partnerships with/between: Genomic Services Medicine Alliances and Regional Clinical Genomic Services; Local Maternity & Neonatal Systems; the National Child Mortality Database; local authority public health teams; NHS England; Office for Health Improvement & Disparities; relevant professional bodies; and others.
Undergo training sessions delivered by NHS England and link with Close Relative Marriage Neonatal Nurses in other High Need Areas as part of the wider Culturally Sensitive Genetic Literacy Project. Design and deliver training for neonatal team at local level. Establish and contribute to a multi-disciplinary community of practice

Please refer the Job description for details