Information, Knowledge, and Support Adviser (Rare Dementia Support)

at  University College London

ABOUT US

Rare Dementia Support (RDS) is a UCL-led collaborative service offering specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. Our vision is for all individuals with, at risk of or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. RDS is provided by the UCL Dementia Research Centre (DRC) at the Queen Square Institute of Neurology and the National Hospital for Neurology and Neurosurgery – where the post is based – and partners, and funded by The National Brain Appeal.

ABOUT THE ROLE

You will contribute to the work of the Rare Dementia Support (RDS) direct support team providing advice via support calls and in-person at the new Rare Dementia Support Centre (RDSC) by supporting people living with atypical, inherited, and young onset dementias, their carers, their families, and their friends, and professionals and practitioners working to support them. This role includes the opportunity to shape and direct special projects related to the development of new support groups, professional training, or patient and public involvement/engagement (PPI/E), in line with the activities of RDS and the wider Dementia Research Centre.
The role is available immediately and funded by the National Brain Appeal until 31 March 2025 in the first instance.
This post is offered on a hybrid basis with the expectation that you will be on site or at agreed regional work locations for 40-60% of your working week. You will also be expected to occasionally work on Saturdays and some evenings to attend support group-related activities which are usually held off-site in central London (but may require business travel). Restrictions on taking annual leave at times of high, section-specific workload may apply.
Enquiries regarding the role are welcome; please contact Nikki Zimmerman (nikki.zimmermann@ucl.ac.uk) or Professor Seb Crutch (s.crutch@ucl.ac.uk).
If you need reasonable adjustments or a more accessible format to apply for this job online, or have any queries regarding the application process, please contact the Institute of Neurology HR Team (ion.hradmin@ucl.ac.uk).
A full job description and person specification for this role can be accessed below.
We expect to hold interviews the week beginning 09 December 2024.

As well as the exciting opportunities this role presents, we also offer great benefits, some of which are below:

• 41 Days holiday (27 days annual leave 8 bank holiday and 6 closure days)
• Additional 5 days’ annual leave purchase scheme
• Defined benefit career average revalued earnings pension scheme (CARE)
• Cycle to work scheme and season ticket loan
• Immigration loan
• On-site nursery
• On-site gym
• Enhanced maternity, paternity and adoption pay
• Employee assistance programme: Staff Support Service
• Discounted medical insuranc