Paediatric Haemoglobinopathy Clinical Nurse Specialist

at  University Hospitals Coventry and Warwickshire NHS Trust

Do you have a passion for the complexities of caring for children with a haemoglobinopathy diagnosis and their families? We are looking to recruit a motivated and hard-working individual. Someone who has an excellent clinical skill set and the compassion and communication skills to foster efficient relationships. They must effectively care for the child and families of children with a haemoglobinopathy condition who require both physical, emotional, and psychological support.
The post-holder is an autonomous practitioner who will provide specialist nursing advice and support to children and young people (CYP) with a haemoglobinopathy diagnosis and their family, throughout the care pathway.
They are a clinical expert, working autonomously as a senior member of the multi-professional team; providing specialist paediatric haemoglobinopathy advice and contributing to service development. They are able to make informed decisions and develop and coordinate the care of paediatric haemoglobinopathy patients within their scope of professional practice.
The post holder will ensure that staff, patients and the public are involved throughout their care to ensure agreed standards and targets are me and they will provide clinical leadership, promote nursing excellence in practice and be able to work across organisational boundaries.
University Hospitals Coventry and Warwickshire NHS Trust, rated as good by the Care Quality Commission, is one of the largest teaching Trusts in the UK.
We are extremely proud of our employees across our hospital sites, with high quality patient care at the heart of everything we do.
Boasting some of the most modern facilities in Western Europe, the Trust is renowned for being at the forefront of research and innovation as part of its blossoming reputation as a worldwide leader in healthcare.
We are proud to be recognised as a Pathway to Excellence ® designated organisation – please click the link for further details about this prestigious award. Pathway To Excellence ® - University Hospitals Coventry & Warwickshire (uhcw.nhs.uk)
By joining our exciting journey, you will form part of a passionate, talented team and will be able to access a wide range of learning and development opportunities. There has never been a better time to join our team.

The Trust is committed to building an organisation that makes full use of the talents, skills, experience, and different perspectives available in our diverse society. We want everyone to feel they are respected, valued, can achieve their potential and receive the most appropriate and relevant care. We will create an environment where the equality and human rights principles of fairness, respect, equality, dignity and autonomy are promoted and are part of the organisation’s core values.

• Coordinate the care of haemoglobinopathy patients and promote good practice in the diagnosis and management of CYP with a haemoglobinopathy condition and their families.
• To provide CYP and staff with specialist advice to manage simple and complex symptoms
• To work collaboratively and share expertise within the multidisciplinary teams both locally and nationally.
• To act as a resource in the care of patient’s needs, ensuring an optimum level of service to patients and their families.
• To work closely with network, other hospital, and community staff to ensure an effective seamless service.
• To provide a high level of communication skills to enable effective and comprehensive care planning within the multi-disciplinary team.
• To build up a skill set to embed patient and public involvement within the sphere of specialist nursing practice.
• To ensure that CYP and their families are aware of all treatment options, including clinical trials
• To work as a patient advocate, to help negotiate the patient journey and ensure optimum care is provided.
• To adhere to infection control guidelines and procedures.
• To act as a positive role model and promote an effective team ethos through the demonstration of excellent clinical skills.

For further details please see the attached job description

Please refer the Job description for details